This morning at 7:30 I had my 3-month follow-up PET scan in Fairfax. I’ll be getting scans every 3 months for a while, then every 6 months, every year, and eventually (I hope) will stop altogether. My oncologist appointment isn’t for another three weeks (getting an appointment with any specialist in Northern Virginia is so [...]

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Two new sets of results in one day! I just got a call from my gastroenterologist. The pANCA/ASCA test results are back, and they are positive for Crohn’s disease. The pANCA/ASCA test isn’t a definitive test, but it’s a strong indicator (something like 80%) for Crohn’s. So, my GI doctor says I probably do have [...]

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Today I got back the results of my follow-up tissue analysis, this time done by the NIH/NCI lab (National Institutes of Health / National Cancer Institute). They also confirm the Hodgkin’s Disease diagnosis, but they also add some interesting information on the connection with Crohn’s disease, and in particular with the 5 years or so [...]

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I had my follow-up with the surgeon Thursday. I’m healing quite well from the small bowel surgery of two weeks ago, and all looks good with that. We spent most of the time chatting about the new diagnosis of Hodgkin Lymphoma, and what that means, as well as the doubt now cast on the original [...]

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Wednesday was my appointment with my gastroenterologist who’s been treating me for Crohn’s since the beginning of this year (after my previous doctor stopped accepting our insurance carrier, United Healthcare), and who recently referred me for surgery (which was the best decision we ever made!). The biggest shock was that he said his interpretation of [...]

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